I got a totally unexpected phone call today. Wait, back up, not true. When I saw the allergist’s office number on caller ID I figured it was my reminder call that we had an appointment in the morning to go over his allergy history and talk about test results. I expected a negative on the peanut and crazy high on tree nuts.
What I did not expect was the nurse to say, ” Dr. D wants to do an oral food challenge… we have his test results and he came up negative for everything.”
Being a totally in control calm mother… I dropped the phone.
As I dove off the bed frantically grabbing for iPrecious I must have looked like a fish gasping for air. “What? Wait? How? I mean…his diagnosis was based on a nasty anaphylactic reaction and positive skin tests since. How can it be NEGATIVE?”
I also, to my total surprise, found myself near tears. Not sure why yet. I think maybe it’s the possibility that this might be over. That he might be the 1:5 child that outgrows such a severe allergy. Maybe. I don’t know. I like surprises. Actually I LOVE surprises… notes on my van, flowers, sweet comment from those I love… but I wasn’t sure what to do with this one.
I’m still having a difficult time comprehending this. Dr. D even point-blank said last year, “This is a lifelong allergy. Get used to it.” And I was fine with that.
His last skin test for peanuts was negative. And I was okay to just keep avoiding since we were quite sure about the cashew/pistachio allergy.
But now… with his age and 0.0 test result for peanuts… and everything else being negative… Dr D wants to do the oral food challenge.
Tommy had said there was no way he’d do the challenge. No reason. And I agreed. But then it could be that we find out he’s no longer allergic to any of it. And… wow.
The nurse also said he wanted to do cashews in few weeks. Whoa, Bud. Whoa. One step at a time here, Buddy. I’m all on board for checking peanuts with a 0.0… but my understanding was that his RAST testing reported the presence of tree-nut antibodies in the blood, just that they were low enough to not be statistically relevant. Translation: antibodies are there but his body may have calmed down. He might not be allergic anymore.
The only way to find out?
Oral challenge. Basically: we don’t think you are allergic anymore, but the only way to find out is to give it a go. So — eat this!
And that is why you need to envision my trying not to FREAK out. For years I have coached this child: never touch pn/tn, always read labels, no baked good, no label means can’t have it, never hide if you think you are having a reaction, do you have your epi-belt on…. and so on and so on and so on and so on. And suddenly we’re being told he might have outgrown it?
Don’t get me wrong, I am cautiously beyond optimistic. But I saw what his little body did during that first anaphylactic reaction. I can still imagine him in my lap wheezing, covered head to toe in hives and bright red. He looked like he’d been sunburned and stung by a thousand fire ants all at once. He was throwing up. Lost control of his bowels… and this was all within a few minutes.
Of course I want this allergy to be gone.
But I’m scared to believe it.
So… baby steps. We’ll try peanuts in the morning. 8:30 a.m. No breakfast, no antihistamines.
They’ll put some on his arm, then his cheek, then his lip, then he’ll eat some. Vitals will be monitored throughout. They have all the emergency equipment on hand just in case. It’ll take 3-4 hours.
I am feeling fairly good about peanuts. Tree nuts? Get back to me later.
Deep breath…here we go…

*image from web
OH…MY…GOD!!!
OH…MY…GOD!!! That is so amazing! I got tearful myself at what this miracle could mean for him. Not only in taking away the constant threat to his brilliant life, but also the freedom of experience and choices it would give T-man. Fingers and toes crossed and will be praying for good results. Wow…
Wow! Good luck on all of this! As a fellow mom who has 2 children allergic to p/n I can totally understand how you must feel. This post is totally my dream = to one day not have to worry about our kids eating the wrong thing. The fear is so intense and all consuming, I can’t imagine living w/out it. But I hope I can one day and I hope you can too.
OMG Good luck today!! And thinking of you both as you face the tree nuts. One step at a time!!
(raindropsmommy from 4/02 BBC)
OH WOW!!! Good luck!! We did the peanut challenge last year (passed!!) so I know how nerve wracking these can be. Your tree nut challenge would be our wheat challenge. I pray every day. His numbers are still a 6 (greater than 100) but I hope one day they show up as “0″ too. Keep us posted!! I’m praying for him. Hopefully Dreams and Prayers do come true